Tuesday, March 8, 2011

Please share your stories about Zack...



As we go through this dark time in our lives, we are comforted by the stories of Zack's 3 and a half years in our lives.
He has not only changed our family and friends forever, he has also impacted and inspired those who have never met him.

These are our stories and thoughts as we think of them...please read to know how precious our son is and how much we want to have more time with him.

Please comment with your stories below so that we can read how much our Zack has meant to you.

Our Stories....
We have to start with Elmo- not only every night, but when Zack is upset or scared we hum Elmo's song.
Zack loves to push the tv buttons while Ty and Jayden are watching TV in our room...once they yell "no Zackie"...he runs to his room and plays with those buttons laughing all the way down the hall.
He's a natural drummer
He loves to club the couch and look out the front window (and destroy our blinds)
His favourite foods are Froot Loops and Pudding...he especially loves to do pudding fingerpainting on our table.
He LOVES to play in the bath
He has some shirts that he will not let us put over his head without making a fuss
He loves to empty the dishwasher
Zack once threw a full bottle of red wine off our landing...what a waste!!!
Every book on my bookstand has no cover...in recent months Zack has loved to tear them off in shreds and laugh
When Zack gives you a hug...he reaches his hands up and brings you in close.
While he can only say some sounds verbally, he can hum Elmo's World theme and Jingle Bells
He loves his trampoline and his red car
He hates hats!

When he smiles, his "walnut" cheek can show us from behind that he is happy

Ty is his hero...he looks up at Ty and smiles with admiration

Jayden blames Zackie for dumping the laundry basket, breaking things and eating chocolates, when he is to blame!!

75 comments:

Jennifer Gilbert said...

Thanks for sharing these stories so we can know Zackie better. I hope to meet him someday soon! Keeping you all on my prayers!

Michelle McLeary (Y. Central) said...

I only see little Zackie at the hospital when admitted...but always full of life & energy...we do all we can to make him feel better but NO ONE can do it like a good drum set and Elmo...that I have learned!!!! His smile is contagious and we all can't wait to see it again!!! Much love Heather...

Anonymous said...

You are in my thoughts constantly. I will never forget when I first met Zack at Wyatt's Walk in September 2010. He had the brightest smile I have ever seen and had the biggest group of supporters :)
I love the stories that you shared, helps us to know him even better. I can just picture him throwing that bottle of wine!
I have not known you guys very long, but you are an amazing family with amazing children and I am hoping, praying, thinking, sending love and everything else I can to you all so that Zack can get better. I want you to have many many many more years - you have so many more memories to make.
If there is ever anything I can do or anything you need, please let me know,
xoxoo
Laura

Smita said...

Although there are many, my fondest memory of Zack was when he was at our house and I gave him our ride-on car which was sitting in our basement. Well, he got right on it and started chasing the other kids around the house - he thought it was a hoot and was laughing so hard while the other kids were trying their best to outrun him! And that was the beginning of Zackie and his little red car....Once the weather improved; he would ride his red car outside and would go pretty darn fast!! He would zip down the sidewalk with such agility and speed and he loved his freedom! His beautiful smile and laugh when he would try to "run" away from us will forever remain etched in my memory. We love you Zackie with all our hearts!!!
Smita, Sunil, Dillon and Nikki xox

Jana said...

I meet Zackie was he was almost 4 months old. I know and love a lot about him:
- he has the best giggle and makes everyone around him laugh too
- actually has a strong hug and you know it when he loves you
- his "walnut" checks light up his face
- his first sign was "more"
- he always loves music, the louder the better
- his mom makes him smile more than anyone ever
- his dad can make him giggle with his daddy play/ roughhousing
- he does stand up to his brothers
- he loves his little red car, inside and outside
- he's so proud of himself when he learns something new (to sit, to stand, to bang)
- he loves to bang anything! A natural drummer for sure
- he's as busy and curious as every other boy his age
- you'll always know when Zackie doesn't like something
- Elmo is his favorite thing!
- he likes to throw things on the ground
- he has the most positive parents who are the best role model
- he loves to jump on his trampoline
- he's a great little kid

I'm honoured to know little Zackie and his family. They are so positive, and are the light in any darkness. They see the joy in small things, which many of us forget. Zackie came into their live for a reason, and them into ours. I'm sending my love, light, fairydust and everything else. Zackie is a fighter, and his parents are to be admired. I only hope to be such a great parent, like they are one day.

Zackie- Thanks for making me smile and ingraining that giggle in my head. I'll see you soon! ;)

John Lindo said...

Ever since we first met Zack he always brought so much joy into a room. We always saw it best through our son Logan who is a huge fan of Zacsk. When the Wyat's Walk took place last year Logan was so enthusiastic about being being on Zack's team that he phoned everyone he knew to help out. Zack brought that out in him and in everyone who was part of that team.

I still remember when we saw him walking for the first time and it was just amazing how much he has overcome and how many things he has done that people said he couldn't do.

You guys are such a strong and amazing family, all our love is heading your way. We are pulling so hard for Zackie that we have barely slept!

Little Zack's smile is just amazing and we can't wait to see it again soon.

Nena said...

I have never met Zach. But I feel like I know him well and his story touches ny heart. Heather you know why that is. He's pictures and smiles say everything. He is a beautiful boy and I hope that he gets through this and keeps on fighting. Big hug!!

Soulla said...

I have to agree with John - one of my best memories of Zack was when he first started walking. He was so happy and had a HUGE smile on his face, as did we.

He's such an inspiration. Forget Justin Bieber, it was Zack who taught us to never say never!

Still sending lots of love and positive vibes your way!

xoxo

Joan Jensen said...

Heather -Thank you for sharing your blog with your stories of Zack. Thank you making sure I have a picture of me and Zack at the Santa Claus parade. By the way, did you know that my very special day, my wedding anniversary is September 23rd 1995?

Tara Katz said...

I never had the honour of meeting Zackie, but that beautiful smile of his warms my heart everytime I look at his pics posted on facebook. Heather, you and your family are in my thoughts and prayers.

Krista D said...

As I read these stories, like many others, it’s Zack’s smile and laugh that come to my mind first.
From visiting Daddy at work, to our get togethers, his smile always brightens the room - it is absolutely contagious!

Thinking of you as you fight along side him.

xo

Anonymous said...

When we think of Zack.......
-we see his beautiful smiling face
-we remember the first time we saw him walking.......this was AMAZING!!!!
-we think of him going up and down the street holding his own around the other kids
-lifting his arms for a great big hug.......and smiling
-a boy with incredible people as parents we can all learn from
-a wonderful, kind, loving family
-a special little boy we can't stop thinking about and have in our prayers

Lots of love.......Jo, Gi & La

Karen said...

Everytime I think of Zackie, it makes me smile because all I can think about is him rushing down the sidewalk on his little car with the biggest smile imaginable. The other thing that always warms my heart is litening to his incredible laugh every time someone sneezes. He is a very special boy! You are in our thoughts and prayers!
Love the Hazans

Lisa said...

Heather,
I read these stories and it brings tears to my eyes... mostly because I've known you since before there was Zack or Jayden or Ty or even Paul (okay there was always Paul but he was just a "boy you liked" at the time). I went to your wedding and watched you look into Paul's eyes while you danced your first song as husband and wife and I thought to myself at the time "I hope I find a love like that some day". Time passed and we lost touch as often happens when "life gets in the way". Then facebook reconnected us and I watched through photos and status updates as you went through your pregnancy with Ty and then again with Jayden and Zack. I could not have been happier for the both of you. When Zack was born and you updated all of us thorugh social media of your struggles I cried as if I was there with you (thanks for sharing your stories). While I've never met Zack, I feel as though I know him and he has been a part of my life since the day he was born. He is a very lucky boy to have such amazing parents as you and Paul and you are a very lucky family to have him as a part of it. I love all of you and even though a lot of time has passed since we've seen each other, I want you to know that I think of you every day and you, Paul, Ty, Jayden and especially Zack are truly an inspiration to me. I'm praying like I've never prayed before that you all have many more years together and it is my biggest wish that Zack wakes up and comes to all of you real soon. Sending you all my love. xoxo. Lisa

Nikki McDaniel said...

I have only met Zack a few times, but I will never forget his infectious smile!! When I first met him, his smile brought tears to my eyes! He has taught everyone one very important lesson, that miracles do come true. Zack is a miracle, and the strongest little boy I have ever met. He is in my thoughts always, and I pray for his recovery. Heather,Paul,Ty & Jayden, find strength from all of us who pray for you. I believe in miracles.

Auntie Kath said...

I have so many amazing Zackie moments but I think my favorite was last summer when Zackie was newly walking. He was showing me how to used his new walker on the sidewalk.. Off we went for our stroll and while I stopped to pick up a toy he dropped (Elmo toy I am sure) he turned around and took off on me down the street! Scared the crap out of me and brought me to tears of joy all in 1 moment. He was smiling ear to ear with that incredible smile and so proud to show me what a fast walker he was.
I love walking in for a visit and being greeted by Zackies big beautiful and infectious smile.
Love you Zackie. Can't wait to see that incredible smile again soon!
Auntie Kath xoxoxoxo

Bernadette said...

Heather & Paul, as I read all these amazing stories about your little Zackie... I also remember all those times the boys' work visits and our small get togethers. I remember when the twins were born and Paul emailed us their pictures... even then his smile stood out.
You two are pillars of strength and inspire me!
Keep on fighting Zack, your mom and dad need you as much as you need them.
Miracles happen every day. Our prayers and thoughts are with you during this trying time.
XOXO, Bern, Yan, Mikayla & Ryder

Jennifer said...

Like many of the other stories from our street, I cannot help but smile when thinking of Zackie first walking on his own! Especially as he kept wanting to explore outside of the WW Christmas party room! We could see the pride (and a bit of mischievous!) in his eyes with this accomplishment.

And yes, the red car! He definitely can maneuver his way down the street in no time at all! There's no way he is going to let those kids on training wheels get ahead of him!

Zackie, you are constantly in our thoughts & prayers. All our love, Jenn, Tim, Ella, Austin & Abby

Anonymous said...

i also have to say the first time i saw zack walk was for me the first and only time i witnessed a miracle. we were at karate one night and when heather came and the end of the class with jayden and zack...zack was walking, with a big smile on his face like it was nothing. we all walked outside to get in our cars to head home and i was overcome with tears...i was tying to just get to the car with jake and hide the tears...but heather knew...right away she said 'is alex crying? zack u made her cry'. and he had....my heart was leaping, getting to see him do something that others said he may not, yet it was something his family knew for certain he would. this is the love and the faith and the strength he has been raised with. this is what gives him the power to make his own miracles.
i will continue to pray and wish and hope for zackie...he makes me believe in miracles.
hugs,
alex

Michelle said...

Heather....although I have not yet had the chance to meet little Zack I feel I know him through all of your stories, pictures and advise with Matthew. You can tell from his pictures that he emits life, positivity, love and strength. He is an amazing little boy who has already accomplished amazing things through his fight to prove doctors and prognosis' wrong! He has such a strong will and I would give every ounce of my being to give him more strength to help him with his latest fight. He has wonderful parents and brothers that love him so, and I believe all that love, support and strength will help see him through. Zack and his entire family will be in our thoughts and prayers until he is home in his mommy's arms snuggling and watching Elmo where he belongs! Big hugs to all of you!

Nurali said...

For us Zack is a strong and courageous little boy with a smile that can warm your heart and light up a room.
Our fondest memories are of him and Sarah during their baby sign language class with Jana.
Zackie and the family are always in our thoughts and prayers and we pray everyday that God grant him the strength and courage
to get through this tough time. We need to see him motoring along in his ‘little red car’ on the street real soon.

With all of our love, support and prayers

Nurali, Yasmin & Sarah-Noor

Soulla said...

Logan wanted to post a special message for Zack:

"You're a really good friend. We always have a great time together. I would do anything for you."

xox

mommylebron said...

This is my first time here, I just want you to know I am thinking of your family and sending all the virtual love and ((hugs) I can muster.

The MeFest Team said...

I still remember your post
"MY ZACKIE IS WALKING IT'S A CHRISTMAS MIRACLE"
I was thankful to take part in your joy that day.

Hugs and prayers
Lisa

Working Woman with A Stutter said...

Hi Heather,

You don't know me but I am a friend of Zee's and his lovely wife. Over the years, he has told me about your wonderful children and your beautiful family.

In the past few days, as I heard of your little Zack being ill, I felt compelled to read your blog and as I started I could not stop till I had read each and everyone and seen each and every photo. Your blog gave me a beautiful picture of who Zack is and he is this way because of what you and your husband have instilled in him and your other children too.

I have been praying and praying so that this little guy that I do not know but now want to meet so badly will be well. He has taught so many people so much and I know he will continue to teach many more people. Thank you for sharing your family stories.

I am amazed and admire you as a mother and a beautiful woman inside and out. Having children is hard particularly when they have a disability. I applaud you and Paul for everything you do. I hope to meet your family one day soon to tell you in person what I have written.

God bless you!

Carolina

Heather said...

I never met Zack, but I am sure he was a wonderful son and person. My thoughts are with you.

The Coupon Goddess said...

My thoughts and prayers are with your precious family. May God give you the strength to face whatever comes your way and may he give you peace no matter what. Hugs to you.

Krista H said...

There are so many special moments from working with Zack that it is hard to choose. However, I have to say the one that comes to mind is the first time he climbed up the stairs on his own last fall. When he got to the top he turned around and gave us a this look of complete joy and FREEDOM!!!!!...then turned and took off for the TV in the bedroom!

Zack is one of those special kids that we as therapist love to work with. He challenges you every step of the way while all the while still constantly amazing you!

Heather and Paul, it is a privelage to work with Zack and your family and know that your team is out here ready to help with whatever you need.

Redneck Mommy said...

I just want you to know I'm thinking of your family and of Zack. You are all in my prayers.

Anonymous said...

I left a comment here earlier today. but I see it didn't make it to your post. It's just after midnight and singing Zackie songs feels a little hollow.
I've been singing them since I heard about him from your Dad. I met Zack once and he completely captured my heart. I wish I had something wise or profound to say but I don't. I'm holding you all very closely in my heart and singing as much as I can.


I do send huge hugs and all my love.
jan

Auntie Amanda said...

The wonder of Christmas was in the air, we were settling in after Santa Day. The kids were full of excitement while the adults were reminiscing and catching up. I was in another room trying to get comfortable, a month from my due date, when low and behold Zackie came strutting by all by himself with no support but his balance. His first steps were taken then. I will never forget the look of sheer joy and pride that came across his face and the family's. The tears of joy that flowed at this accomplishement. Zackie had worked so hard to get those steps and his determination ensured that he would, at what I find is the most magical time of year. To this day I am blessed to have been a witness to that most special and miraculous day. So much love.

Jessica said...

Oh this just breaks my heart beyond belief. I lost my daughter as an infant and can't imagine having to go through 3 years of memories the way that you are. My thoughts are with you during this time.

Jen said...

My heart breaks for you, I have nothing that can make your pain go, just know that I'm thinking of your family.

Amanda Johnston-Rilan said...

These last days I have thought of little else but Zack and your family fighting for his life. But truth be told, lately, I have been thinking of you too Heather. I have read your passionate words about parenting, marriage, race, friendship. I have been inspired by your strength, your sense of humour, your beautiful way with words. I haven't seen you in many years but feel as though the connection woman have, especially the connection of mothers stands the test of time. I want to thank you for that. I cannot imagine the pain you and your family is in right now, but perhaps you can draw comfort from the fact that accross the years and accross the miles, the Hamilton family has been and will always be an inspiration to me. I want to do better and you show how that is possible. Your beautiful Zack has been a joy to read about and I thank you for sharing your candid words with the world. It has meant a lot to me. I will hug my Macey and Miles tightly today and always. You are in my heart today.

mamawee said...

I don't know you or your family. But reading your blog - brings a smile to my face to see the happiness in Zack's.

My heart/thoughts and prayers go out to you and your family during this time.

No words come to mind to help ease your pain,sadness or hurt.

Sue Duff said...

I cannot think of just one favourite moment that I spent with Zackie. They were all precious and incredible. Everyday he fought battles, won courageous moments and stole everyones heart with his infectious smile! I guess,if I had to choose, it would be how he communicated with me. He may not of said a lot of words but his actions were quite clear. Zackie would clap his hand on my leg when he wanted to be picked up. I loved to carry him...although Mom would say, "he is a big boy, he doesn't need to be carried". I couldn't resist when he glanced up at me with that incredible walnut smile. Grab my hand, when he wanted to walk...I got a lot of exercise until he mastered the art on his own. When he was hungry he would sign and walk to the cupboard where his favourite pudding was. If you didn't respond fast enough he would get his place mat out and bring it to the table. When he didn't like your choice of food he knew how to let you know! Pointing to the cupboard until you got the right one out! Which was vanilla pudding....of course! When he was done eating he threw the dishes on the floor. Pretty explanatory if you ask me! Oh, I should mention...No BIBS! As fast as you put them on he took them off. After all...he was a big boy who could feed himself. Bath time was a favourite time for him. He loved the warm water and toys but when he was done...he pulled the plug! When he was tired he would hum the Elmo song...it was time to sit in his favourite chair and fall asleep watching Elmo. His Hero! I really can't sing...most people would leave the room to hear my voice. BUT for Zackie I mastered, "Row Row Your Boat". To sing this song was the only way he would accept the inhaler treatment(mask with aerochamber) for his asthma. Best of all was when he wanted a cuddle or a hug...he would put his loving arms around your neck and place his adoring cheek to the right and to the left...maybe there is Russian in his family history. Ba!...Ba! was his language. It meant he was having a good day! I will miss you sooo...much! You will forever be in my thoughts and my heart! I am so blessed to have been able to share in your life.

Gina said...

We are so very sorry......
Our hearts hurt for the loss of Zackie and we can't begin to imagine the pain you are feeling
Our thoughts are with you

ScenicTourGuide said...

We've not met, and I don't know you, but I heard of your blog on a local forum. I identified with your name for yourself - Warrior Mommy - what a wonderful name. I too have a young son - 2 years - with a genetic syndrome.
I am so so sorry for your loss, and so very grateful that you shared your beautiful family with the world this way.
Sending heartfelt condolences to you and your family.

Tammi @ My Organized Chaos said...

Sending my thoughts, my love, my prayers...my heart is breaking, please know that there are many thinking of you...

Cassondra said...

I just heard about your loss reading a Daniel Goddard tweet I am so sorry for your loss i will be praying for your family Im a mother too and i cant imagine the loss you are feeling right now God please help this family be there for them in their time of need bring them strength in Jesus name Amen

Cassondra

Elizabeth said...

I never met your son but heard about him through Louise Kinross' blog and see his beautiful little face in my mind. My heart goes out to you as you mourn him -- may you be comforted -- may you be at peace.

Lisa @ Crazy Adventures in Parenting said...

I am so sorry for your loss, sweetheart. Prayers for you and your family during this tough time.

Supermom said...

I recently was told about your blog from a friend (aka Wondermom) and I read it from start to finish.
I too have children with special needs (autism) and while they are not as fragile as Zack I have to say from one "special needs mom" to another .... you amaze and inspire me.

Anonymous said...

Oh..oh...oh...my heart breaks for you guys. I'm so sorry to hear that little Zack is gone. But he'll never really be gone...he's such a part of you. I love that in God, every life is so precious, no matter how long or short it is. Zack's life had such meaning and purpose...he blessed everyone he met! I loved seeing him in our church Nursery...I loved seeing Jayden and Ty so loving and protective and proud of him...I loved seeing your family be part of our church family. May God be WITH you as you grieve...may He give you comfort and hope...may He give you mental pictures of Zack running and laughing and playing in heaven. If there's ANYTHING we can do to support you, PLEASE don't hesitate to let us know.

with love from Ruth Crawford and all your friends at the bridge

Alyson said...

Heather

You and your family are in my thougts and prayers. Zackie was a BEAUTIFUL littel boy. I remember one sunday when I was in the nursery Paul put Zackie in the high chair while he got him something to eat Zackie told daddy to HURRY UP by rocking the highchair WOW did he make that chair move. I can still se his walnut smile.

Tonia said...

Heather you are an amazing mother and you have a wonderful family. I always remember Zackie giving you that huge grin with that sparkle in his eyes which would make your eyes light up. What a beautiful little boy so carefree. We feel for you can't imagine what you and your family are going through, just know that he will always be remembered and we are here for you all.

Love Iori Family

moosh in indy. said...

I'm new to Zack's story but I can tell you that my heart melted the instant your header image came up.

What an amazing little spirit he has.

BarnMaven said...

Stopping by after reading about Zack on Twitter. You are all in my thoughts and prayers tonight.

mom2girls said...

Hugs to you and your family tonight, and threw this time. I am thinking of you and yours. Know that your cyber family is crying for you and with you.

Anonymous said...

You don't know me, but I am a mom of three and my heart goes out to you, your family and your precious and beautiful little boy Zackie.
My thoughts are with you and I pray that you find the strength to get through this difficult time.
God Bless.
Marisa

PenPen said...

My heart breaks along with yours
Zackie was the most loving little man I have ever met.Your whole family is amasing.
A Zackie moment:
Rocking and walking trying to hold
him like Heather did...he'sleeping
ELMO toys,video to sleep by
G/T to Mickey
Cheezie to mouth thanks Jayden for sharing
Slapping button to make air blow
or to push annimals down
Wagon rides,his own bike,then the red car
Apple Elmo party..2nd birthday
Every moment spent with Zack was so special
smile,laugh,cheeks.brown eyes sparkling,kisses,hugs,pats on face
Zackie you have my heart
I never saw you walk or run but feel your wind on my face
Sleep my little one

Anonymous said...

Heather and Paul - we are all thinking of you....and will keep that incredible Zackie smile close to our hearts,

Rochelle Coleman
(and Zach)

KKL Bracelets said...

Thank you for sharing this with us! On behalf of myself, Paul, Kristan, Kaitlyn and Lauren please accept our sincere condolences. We can't begin to imagine what you are going through and am in awe of the grace you have displayed throughout all this. Zack is an amazing boy; his life and your beautiful family has and will continue to inspire our three girls with their charity work.

Deanna xoxo

I have played this song often when thinking about you all...

Mercy Me: Homesick

You're in a better place, I've heard a thousand times
And at least a thousand times I've rejoiced for you
But the reason why I'm broken, the reason why I cry
Is how long must I wait to be with you

I close my eyes and I see your face
If home's where my heart is then I'm out of place
Lord, won't you give me strength to make it through somehow
I've never been more homesick than now

Help me Lord cause I don't understand your ways
The reason why I wonder if I'll ever know
But, even if you showed me, the hurt would be the same
Cause I'm still here so far away from home

I close my eyes and I see your face
If home's where my heart is then I'm out of place
Lord, won't you give me strength to make it through somehow
I've never been more homesick than now

In Christ, there are no goodbye
And in Christ, there is no end
So I'll hold onto Jesus with all that I have
To see you again
To see you again

smilenwaven said...

My heart breaks for you both and your entire family. Although I didn't know Zack personally, I feel I knew what a special little guy he was through your beautiful words and pictures. Huge hugs xox

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